![]() They can work with you to create a bespoke package of support, including mentors and mentees who have a hearing as well as a visual impairment.Background: This study aimed to compare phenotype−genotype correlation in patients with Usher syndrome (USH) to those with autosomal recessive retinitis pigmentosa (NS-ARRP) caused by genes associated with Usher syndrome. Mentors draw on their own life experiences to guide younger VI people through life challenges: managing sudden sight loss social isolation confidence building coping with school and transitions independent living and mobility work skills. To get in touch, visit: or email: unique mentoring scheme links their team of young, trained VI mentors with younger peers for support and advice. They also work closely with other organisations to champion the needs of our community and improve the services available to them. They connect children, young people and family members with each other and with professionals that can support them. They can give you tailored resources which address the specific challenges faced by children, young people and their families living with Usher syndrome. Usher Kids UK offers 1:1 and other forms of support to family members from diagnosis onwards. They provide support, information, connections and advocacy to empower children, young people and their families living with Usher syndrome in the UK. ![]() The organisation addresses the challenges faced by children and young people who have been diagnosed with Usher Syndrome. ![]() Usher Kids UK was established in 2017 by the parent of a child with Usher syndrome. In addition to our support services, we also work closely with partner organisations to give children and young people support and strength to live with sight and hearing loss. If you or your child are affected by deafblindness then we can help. Read about our current research projects.ĭeafblindness can affect people at any age. Read our five year strategy for 2020 – 2025.ĭiscover our rich history of helping people with sight and hearing loss. Meet our Board and Executive Management Team.įind out why were here and what we stand for. You can create a brighter future for people who are deafblind with Payroll Giving.Ĭheck out our available jobs and come and work for us! Refer someone to us for help and support. Together we are creating great memories for young deafblind people!Ī range of fact sheets, guides and information to download. We can carry out deafblind assessments on your behalf, in line with The Care Act (2014).įind out more about sensory loss by booking a deafblind awareness talk for your team. Webinars and courses for anyone who works with people who are deafblind.Ĭould your service, business or venue be more accessible to people with sight and hearing loss? Our latest campaigns to raise awareness of deafblindness.įind out how we work with corporate organisations to lead social change. ![]() Information for trusts and funders who would like to support our work. Our charity shops sell clothes, homeware, books, games and much more! Make a donation or leave a gift in your will to support people living with deafblindness.Ĭhallenge yourself to raise money for people with sight and hearing loss.įind out about volunteering for Deafblind UK. Support with everyday activities like shopping or catching up with friends.įeeling overwhelmed, lonely or just need to talk? We’re here for you.įind out more about sight and hearing loss.įrom smartphones to listening aids, let digital tech help you connect.ĭiscounted holidays in Norfolk and North Wales.Īccess our support with a free membership to Deafblind UK.
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